The 2017 Autism Institute report on national autism indicators focuses on “Developmental Disability Services and Outcomes in Adulthood.”
From the Program Director, Paul T. Shattuck, PhD:
Pressing facts surround this National Autism Indicators Report:
- About half a million youth on the autism spectrum will age into adulthood over the next decade.
- The majority of a typical life occurs in adulthood.
- Only 1% of all autism research funding supports investigation of topics related to adulthood and aging, according to a 2017 report from the Interagency Autism Coordinating Committee.
- Adulthood is the stage of life we know least about with respect to autism research, policy and practice.
We aim to raise awareness about the kinds of services people need, the kinds of services they get and how life is turning out for people across the life course and across different types of community settings. Because this range of topics is so under-studied this report raises more questions than it answers. Our findings highlight the urgent need for additional research to understand how to support quality of life across the life course. A common saying is “What gets measured gets done.” Billions are spent each year on services for people on the autism spectrum. If we are not measuring outcomes that matter at a community level then it is hard to set meaningful goals for improvement or to know if things are getting better or worse over time.
Open the link below to access the full report.